I was wondering if anyone else has had a really hard time finding their tumor. I was admitted into the hospital over a month ago and a lot of tests done. The kidney Dr snidley said I'd be a medical mystery if my tests came back postive for pheo. Well the little mysetery I am it did! Very high! They did both the urine and blood test. I have all the markers for this disease... I had a MGBI scan done as well as a mri and my Dr (not the butthole kidney Dr lol) said that they can be hard to find and it might be so little that it is hard to pick it up on film yet. They told me we might have to wait until it grows larger.... In the meantime Im on new meds and feel like dog doo..... I am so tired of people thinking people with pheo's are nutz or making it up! Just because its rare doesn't mean we should have to be subjected to that! I wish everyone well..!!