Announcements and Board Rules

Announcements and Board Rules

  Feeds Topic Title Replies Views Last Post Author
RSS Sticky Topic NIH Conference/Alliance Fundraiser 0 510

MaryPeebels

Jan 21 16 7:05 PM

MaryPeebels

RSS Sticky Topic Please enroll in the Cancer in our Genes International Patient Databank (CGIP)! 0 393

tues1day

Mar 24 14 9:40 PM

tues1day

RSS Sticky Topic NIH CONFERENCE/ALLIANCE FUNDRAISER (2nd Week of May) 0 905

MaryPeebels

May 4 16 2:11 PM

MaryPeebels

RSS Sticky Topic Phase 2 Study of Dovitinib in Adults with Advanced Malignant Pheochromocytoma or Paraganglioma 0 598

tues1day

Apr 12 13 12:58 PM

tues1day

RSS Sticky Topic Newest Clinical Trial Ultratrace Iobenguane I 131(MIBG) 1 2038

MaryPeebels

Jul 26 13 6:52 PM

MaryPeebels

RSS Sticky Topic A Message from the Moderators of this Board 2 1414

MaryPeebels

Jul 25 13 11:51 PM

MaryPeebels

Hot Topic w/ No New Posts RSS Sticky Topic Testing Guidelines (1,2) 28 12881

MaryPeebels

Mar 3 08 5:50 PM

DHarlander

Moved Topic RSS Looking for diagnosis - - -

varundiv

RSS National Adrenal Diseases Foundation USA Caregiver Survey 0 519

MaryPeebels

Jan 13 15 12:35 AM

MaryPeebels

RSS Pheochromocytoma and Paraganglioma: An Endocrine Society Clinical Practice Guideline 0 868

tues1day

Nov 24 14 9:38 PM

tues1day

RSS ADMIN NOTE: Some Websites We Link to Are Now Subscription Format 0 323

MaryPeebels

Nov 17 14 10:28 PM

MaryPeebels

RSS New Protocol now recruiting participants: Evaluation of (68)Gallium- DOTATATE PET/CT for Detecting Primary and Metastatic Neuroendocrine Tumors 0 668

tues1day

Nov 1 14 10:44 PM

tues1day

RSS Current Clinical Trials for pheochromocytoma 0 475

tues1day

May 7 14 2:58 PM

tues1day

RSS Current Clinical Trials for paraganglioma 0 336

tues1day

May 7 14 2:56 PM

tues1day

RSS 2014 NIH Pheo & Para Patient Conference June 26-27, 2014 0 353

tues1day

Mar 28 14 2:18 PM

tues1day

RSS Fixing Broken Links to Medical Sites 0 460

MaryPeebels

Jul 26 13 6:47 PM

MaryPeebels

RSS Mayo Clinic is seeking volunteers to participate in carotid body research study 0 357

tues1day

Apr 12 13 12:20 PM

tues1day

RSS Update to Organization's Policy and Disclaimer 0 545

MaryPeebels

Dec 22 12 1:35 AM

MaryPeebels

RSS Information concerning SDHx study currently being done by Charis Eng MD, PhD 0 499

tues1day

Dec 4 12 11:59 AM

tues1day

RSS Yuku App 0 499

MaryPeebels

Aug 15 12 5:36 PM

MaryPeebels

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