Information About Doctors

Dr. Inderbir Gill

feeds@yuku.com (tues1day) — Sat, 31 Oct 2009 21:06:32 GMT

Noted urologist Dr. Inderbir Gill leaving Cleveland Clinic for USC
February 18, 2009 by Chris Seper

CLEVELAND, Ohio - Cleveland Clinic urologist Dr. Inderbir Gill will leave this month to become chairman of the Department of Urology in the Keck School of Medicine at the University of Southern California.

Gill's final day at the Clinic is Feb. 28. When he arrives at USC, he also will be director of its new Institute of Urology and serve as an...

Center of excellence for Pheo surgery in California, San Francisco area or US in general?

feeds@yuku.com (betobe) — Mon, 05 Oct 2009 21:45:44 GMT

Hi, I just got diagnosed with pheochromocytoma (95% sure) last friday by MRI, waiting on 24 hr urine test result to confirm... I would like to see a specialist in California San Francisco area if any, then find a surgeon who has lot experience in this area and laparoscopic surgery...

For those who don't have experience in California, where are the hot spots in the US for this type of pheo laparoscopic surgery? and recommandation for specific Dr's? Thx! bb

Did the FDA approve the 131MIBG treatment?

feeds@yuku.com (Vonnie) — Thu, 11 Jun 2009 23:46:16 GMT

I am waiting to hear from Duke on a date for treatment. They said the FDA has pulled the drug and might approve it for a treatment for pheos. Or they will re-release it as a study again. Has anyone else been told this? I had read that someone was going for treatment at UPENN on May 14th. I call every week to Duke and they tell me early to mid summer the drug should be released.

Testing Threads

feeds@yuku.com (MaryPeebels) — Mon, 18 May 2009 13:50:30 GMT

Just a test for the board maintenance.

List of recommended Head and Neck surgeons

feeds@yuku.com (tues1day) — Fri, 01 May 2009 09:30:55 GMT

I think it is important for us to try to help identify surgeons who can be recommended by previous patients who have undergone successful head and neck surgery with hopefully a minimum number of permanent side effects or complications.

If you are able to give us the name and location of your surgeon…we would really appreciate your recommendation. It could prove to be very valuable information for current and future members requiring surgery.

You may send the info to...

List of Pheo Physicians

feeds@yuku.com (tues1day) — Thu, 30 Apr 2009 21:08:37 GMT

Hi,
I am putting this list here for Dr. Pheo to check to see if he wants to add any of these names to the list he is compiling.

University of Florence, Florence
Massimo Mannelli, MD
Associate Professor in Endocrinology, Dept. Clinical Pathophysiology

Erasmus Medical Centre, Rotterdam
Ronald De Krijger, MD , PhD
Department of Pathology, Josephine Nefkens Institute

Christian Koch, MD,FACP, FACE
Professor of Medicine and Director
...

Any Adrenal Sparing Drs in Fl?

feeds@yuku.com (labosc) — Wed, 01 Apr 2009 13:40:31 GMT

Hello
Anyone have any Dr's that they know of that do adrenal sparing surgery in Fl .
I don't think Shand's has any. My lapo won't do it.
Just getting prepared in case this will be what I may have to do.
I am seeing my Endo in 3 weeks go over everything with her.
I have list of other Dr's they are out of State and Mayo out of my network.
All info will help. Laura Fl

Pheo specialist in Tenn?

feeds@yuku.com (Darla) — Mon, 09 Mar 2009 06:53:20 GMT

Does anyone know of any Pheo specialist in Tenn, Arkansas, Mississippi area?

Doctors in Canada

feeds@yuku.com (anirox) — Sat, 27 Dec 2008 11:13:23 GMT

Hey there. We have a Dr. in canada.Dr. Gerstle in Toronto sick kids hospital. Are there any other Doctors out there in Canada who know their stuff about pheo/paraganglioma?

Doctors in Ohio?

feeds@yuku.com (akonsu) — Thu, 02 Oct 2008 22:57:38 GMT

Hello,

My husband has just been diagnosed with a pheochromocytoma.
Can anyone recommend a pheo doctor in Ohio?
More specifically, is there anyone at Cleveland Clinic?

thanks for any help!
Anna

Attention: NJ members?

feeds@yuku.com (MaryPeebels) — Fri, 06 Jun 2008 22:50:45 GMT

Could the members who gave us the names of Dr. John Clemente and Dr. Charles Simone please let us know what your experience (related to pheochromocytoma) was with these two doctors?

Surgeons in Georgia

feeds@yuku.com (suzyq) — Mon, 28 Jan 2008 00:32:25 GMT

There are two wonderful doctors at MCG in Augusta Georgia. Their names are Jim McLoughlin and Jim Cruz. Both have done many adrenalectomies. They do cortical sparing surgery and venous sampling as well at MCG. They also perform MIBG scans. Please give them a look.

Surgical Nurse

feeds@yuku.com (suek2424) — Wed, 12 Dec 2007 14:15:44 GMT

Hi All,
I was recently diagnosed with bilateral pheos. I just turned forty this past weekend and a newlywed as well. They were found incidentally on a CT scan. In addition to the scan, I have had an MRI with contrast, MIBG, and all of the blood work. I have also been completely scanned from head to toe for any additional pheos.
As stated in at the top, I am a surgical nurse. I don't know if this is a good or bad situation. Sometimes, not knowing is best.I totally understand...

Anyone have a good doctor in Los Angeles?

feeds@yuku.com (Girlwithsomething) — Fri, 07 Dec 2007 05:01:07 GMT

I hope this is the right place to post this, I was curious if anyone had a brilliant doctor in Los Angeles or any ideas or where I should start looking to find one? I want to get another opinion.

Thanks!

Dr. Recs in Houston??

feeds@yuku.com (jordanz614) — Tue, 04 Dec 2007 14:36:19 GMT

HI,
Has anyone had any experience with the Houston recommended doctors? But not pediatric please.

My mother was in MD Anderson with a pheo tumor about 16 years ago and now she has a recurring tumor. MD Anderson has told her they don't accept HMOs. ANyone have any info here or rec to other doctors/hospitals.

THanks

Doctors in Indiana?

feeds@yuku.com (Unregistered(d)) — Sun, 18 Nov 2007 07:46:23 GMT

Just completed the mibr testing this past friday. It certainly appears am headed to surgury, but am very concerned that I can't seem to find any info on experienced doctors with this surgery. Dr. Bravo at Cleveland Clinic and Dr. Chen at University of Wisc. Hospital are the only names I find anywhere!

Anyone know of doctors in Indiana?

This is it

feeds@yuku.com (CHUPPACHUPS) — Mon, 15 Oct 2007 18:41:20 GMT

I guess my previous post was too long so my anouncement of me having pheo went unknowned.

just going today for the bilateral vein sampling and probably discussing with the doctor for surgery to go

I'll see you soon

Trish

Endo on VA Coast, close for SouthEast VA and NorthEast NC

feeds@yuku.com (penybobeny) — Wed, 26 Sep 2007 23:27:00 GMT

Dr. Frank Kohler
4020 Raintree Road
Suite A
Chesapeake, VA 23321
(757) 405-1426

Dr. Kohler has (on average) a 4 month wait for new patients but has experience with pheo and other endocrine tumors and conditions.

pheo surgeon in Maryland

feeds@yuku.com (tues1day) — Tue, 07 Aug 2007 19:48:40 GMT

One of our members, Angela, recently had surgery for a pheo and was very pleased with her surgeon:

Angelas pheo surgeon :

Adrian E. Park, M.D., F.R.A.C.S., F.A.C.S. Chief of General Surgery
Campbell and Jeanette Plugge Professor of Surgery
Department: Division
Surgery: General Surgery
Special Interests: Minimally Invasive Surgery; Gastroesophageal Reflux (GERD); Achalasia; Hiatal Hernia;...

Surgeon in or around Pennsylvania?

feeds@yuku.com (ToPheoOrNotToPheo) — Fri, 03 Aug 2007 10:40:40 GMT

Anyone have any personal experience with good surgeons in or around PA? I Do have friends in Boston as well that I could stay with if need be.

Thanks for any help.
jodie